Support Groups
# | Web Link |
---|---|
1 | NZ CAH Support Group NZ CAH Support Group |
2 | CARES Foundation CARES Foundation |
3 | Adrenal Hyperplasia Network Adrenal Hyperplasia Network |
4 | CLAN - Caring and Living as Neighbours CLAN is dedicated to the dream that all children living with chronic health conditions in resource-poor countries of the world will enjoy a quality of life on par with that of their neighbours in wealthier countries. |
5 | CLIMB - CAH Support Group UK CLIMB - CAH Support Group UK |
6 | CAH Great Ormond Street Parent and Patient Support Group CAH Is Us - Great Ormond Street Hospital |
General Links & Factsheets
# | Web Link |
---|---|
1 | About Kids Health An excellent resource with diagrams to explain CAH |
2 | Wikipedia entry for CAH Wikipedia entry for CAH |
3 | Facebook Group (not related to CAHSGA) Facebook Group (not related to CAHSGA) |
4 | Better Health Fact Sheet Better Health Fact Sheet |
5 | Congenital Adrenal Hyperplasia Education and Support Network This has an Australian Message Board |
6 | National Adrenal Foundation (US) National Adrenal Foundation (US) |
7 | Texas Department of Health About Newborn Screening in Texas |
8 | Hormone and Me booklets A series of booklets developed about Hormone conditions available for download. |
9 | Paediatric Endocrine Units in Australia List of Paediatric Endocrine Units in Australia |
10 | Royal Children's Hospital Victoria - Adrenal Crisis Prevention Adrenal Crisis Prevention |
11 | Genitoplasty Surgery An Article on Surgical Management of CAH |
12 | CAH Factsheet Another Useful Factsheet |
13 | Great Ormond Street Hospital for Children CAH Resources A Useful Set of CAH Resources From an English Children's Hospital |
14 | Management of Emergency or Stress Situations The APEG guide for management of adrenal crises etc |
15 | CAH Pep Talk Website Sydney Children's Hospital CAH Resource Website |